young

onset

parkinson’s

disease

patient & advocate

“With gratitude, optimism is sustainable. If you find something to be grateful for, then you have something to look forward to.”
— Michael J. Fox
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Essay in Arlington Magazine

Interview with Katie Couric

Blog

Still Allie Blog
This Is My Fight Song
This Is My Fight Song
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A Letter to Me…Or You.
A Letter to Me…Or You.
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Becoming Disabled
Becoming Disabled
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Complicated Gratitude
Complicated Gratitude
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“It’s Not Funny, Allie”
“It’s Not Funny, Allie”
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Life Lately
Life Lately
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An End to the Selfie Era
An End to the Selfie Era
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The Art of Being Vulnerable 
The Art of Being Vulnerable 
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Everything Happens For A Reason…Or Does It?
Everything Happens For A Reason…Or Does It?
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The Gift of a Life’s Sentence
The Gift of a Life’s Sentence
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An Ode To Buddy
An Ode To Buddy
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To My Kids On Mother’s Day
To My Kids On Mother’s Day
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Being Present and Other Impossible Tasks
Being Present and Other Impossible Tasks
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In Defense of Being Soft
In Defense of Being Soft
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My Parkinson’s Diagnosis Story
My Parkinson’s Diagnosis Story
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It’s me. Hi, I’m the problem. It’s me.
It’s me. Hi, I’m the problem. It’s me.
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Join Our Community on Instagram @imstillallie

Happy Halloween friends!!!! 👻🎃 I hope everyone has the BEST day! Shout out to all the mamas who miss their babies being babies. Maybe next year when we’re officially empty nesters, I’ll be a “Halloween Mom for Hire” LOL like
You guys…I made it to the freaking World Series!! Ok, so my Yankees got smoked (again!) and it ain’t looking great for the boys, BUT I went to a World Series game in the Bronx with one of my lifelong besties and it was epic!! Yesterda
36 years ago tonight, I was sitting on the gym floor at Eisenhower Middle School in Roxbury, NJ at the end of the Halloween dance. I had been hoping that the boy I liked, a kid named Mike Signorelli, would ask me to dance but it was the last song, &l
I voted yesterday. And despite this big smile, it hurt. (Insert bad political pun here 😝) but in this case it actually really hurt my right hand and arm. Where we live, after you show your ID, you sign a signature card to receive your paper ball
Flashback to Banff! It’s been a few weeks since we headed north to the motherland 😜 🇨🇦for Mike’s cousin Joe’s wedding to his beautiful bride Taylor! I waited to post until they posted their own pics first because that seems like
Don’t you worry gang…this is not just a place for a sassy photo shoot! Even though this building is mostly empty these days, I continue to push for updates on the National Parkinson’s Project (or NPP which I absolutely cannot say w
Had the best time at the @michaeljfoxorg PD IQ event in Charlotte today! Filled with tons of important information and amazing people. I even stole Jimmy’s seat for a second 😉 but the very best part was spending time with my sweet mom - who ma
If I’m being totally honest, if one of us had to get a (currently) incurable brain disease, I’m really glad it was me. And not because I’m some selfless martyr, but because I am a really, really, terrible caregiver. No, really. I
Exceptionally tired but ridiculously grateful. My little fam makes my heart full!! Here’s to another amazing weekend at Notre Dame with friends and football. And one “without” PD at the center (if ya know what I mean 😉) EXCEPT when
Happy, happy birthday Brian!!! I have learned so much from you in our short time as pals. You and Sandra lit up the path that so many of us walk down now and for that I am grateful. And you make me laugh which is even better! Enjoy your day!! 💕
Some days you feel like a rock climbing baddie, and some days you burst into uncontrollable tears after picking up yet another medication for your effing annoying Parkinson’s disease. 😞 This one is huge, will be hard to swallow, and makes my
Two years ago this month I was having trouble walking across campus when we went to visit Ava at school. I couldn’t grip a cup or a pen. I got tired from the easiest things and I was anything but strong or confident. Today I got back on the w
Attention all caregivers…this is VERY important:   I LOVE YOU!   That is all. That is the post. 🥰   Ok, of COURSE I have more to say to you but that is the main takeaway. Especially you, Sig. ❤️   In the coming weeks I a
A year ago today, I produced my last in person event and I’m not gonna lie, I’m having a little sentimental moment today as I look back. I know that these complicated and exhausting events were too much for me to do any more and that walk